“Thanks for the question. Today there are 120 children and, according to the clinical protocol, this drug is, if I understand correctly, this drug is nursa ... norsi ... ", Giniyat said, trying to answer a specific question from KazTAG and a number of other media sources if the children will be provided with Spinraza.
The journalist had to repeat the name of the drug and explain that SMA patients have to take it for life.
Giniyat assured that if the drug is in the clinical protocol, then the patients are provided with it. At the same time, she did not pronounce the name of the drug.
“If these drugs are in the clinical protocol, if we must provide, then we do, within the framework of outpatient drug supply. I know that some drugs were not available, and literally, at the end of the year we included them in the list of outpatient drug supply for procurement, ”Giniyat said.
When asked when sick children will be provided with "Spinraza", the vice minister could not answer.
“Let us answer you. Tomorrow I will call you personally and answer, ”Giniyat told the journalist.
Photo source: picture from an open source